Factors Affecting Who Provides Care

There are many factors that affect who provides the care to someone with dementia, where they are cared for, and how (its approach, its financial backing). These include societal (social and cultural), familial, and personal expectations and responsibilities. Egdell (2013) examined these factors in-depth by interviewing caregivers from diverse caring experiences. The researcher found that relationships, employment, and location typically determined who provided primary care, while the relationship most strongly influenced the boundaries of the caregiving and care-receiving. Additionally, while the carers in the study knew they were not professionals and would eventually need more support, the researcher noted that some may not know that they can ask for and seek out that help. As a whole, the article provides a fuller picture of the conversations, personal struggles, negotiations, and expectations that arise when a person is diagnosed with dementia and requires a carer.

Access this article to read more: Who cares? Managing obligation and responsibility across the changing landscapes of informal dementia care.